Camden's Crusade
Follow Camden's journey and help him fight Neuroblastoma
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Tue, Mar 25, 2014

3/25/2014

 

Camden was up until midnight last night. The Benadryl and Ativan combo worked effectively until 6am, then he woke with hives (or like massive welts). At this point our oncologist has stopped one of the 2 medications in an effort to increase his chances of eliminating hives and getting through the remainder of this week with the more important medication running. The more important med will be running over 20 hours instead of 10. It prolongs the duration of time and stretches out the chances of a reaction, but with the slower rate, his body might tolerate it better. He remains fluid overloaded but at this point his lungs remain clear and his vitals stable. Praying for improvement in that area. The 20 hour med will be starting very soon! God carry Camden!

Gramma Nanc
3/25/2014 09:35:12 am

God has carried Camden thru to this point , I Pray he will continue to carry him and hold all of you tight as we move towards our Miracle !!! God Bless you all :)


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    Picture
    Mommy & Me

    Mommy

    She's going to keep everyone up to date about my progress.  Isn't she the best mommy ever?

    Mommy thought long and hard about my new website.  She thought about protecting me and not putting my hospital pictures online.  But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious.  My mommy wants to make sure that other kids don't go through this and that their parents know what to look for.  My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight.  I love them so much!

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    Diagnosis:  May 9, 2013
    Surgery:     September 2013
    Transplant: September 2013
    STRICT ISOLATION UNTIL
              January 2014
    Radiation:   November 2013
    Antibody:    January 2014
    END OF TREATMENT                
              June 9, 2014    
    DFMO Trial:  June 2014
        (27 months of DFMO)
    **FINISHED ALL TREATMENT
    JULY 25, 2016


    5 years from diagnosis!!
    May 9, 2018
    ​
    5 years from frontline!! 
    June 9, 2019

    IN REMISSION:  pending
    (waiting for 5 year mark from maintenance). 

    Benign Tumor:  June 2019

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