Camden's Crusade
Follow Camden's journey and help him fight Neuroblastoma
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Tue, Nov 19, 2013

11/19/2013

 

Another long day...but it went well.  Camden, Emma, and I packed a lunch and had a picnic in Stafford by a pond...it was fun, but cold.  Cam is starting to get hyperpigmentation on his skin where he is receiving radiation. We got a new organic/natural topical lotion and a spray designed for damaged skin, including radiation burns/damage.  I am really excited about it and I think it will be great now and maybe eventually I can incorporate some new cool lotions into my reflexology work (feels like so far in the future...but haven't lost hope.  Camden is doing well with pill swallowing and today we converted a liquid medication into pill form.... Just wish it wasn't so difficult for him (mentally) to take meds....but at this point he has been through so much, can't blame him : (

Gramma Nanc
11/19/2013 10:35:58 am

Sounds like a real fun day enjoy the great weather !!! Jess hold on to the Hope God has so many great more days ahead for all of you !!! Love Hugs & lots of prayers


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    Picture
    Mommy & Me

    Mommy

    She's going to keep everyone up to date about my progress.  Isn't she the best mommy ever?

    Mommy thought long and hard about my new website.  She thought about protecting me and not putting my hospital pictures online.  But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious.  My mommy wants to make sure that other kids don't go through this and that their parents know what to look for.  My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight.  I love them so much!

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    Diagnosis:  May 9, 2013
    Surgery:     September 2013
    Transplant: September 2013
    STRICT ISOLATION UNTIL
              January 2014
    Radiation:   November 2013
    Antibody:    January 2014
    END OF TREATMENT                
              June 9, 2014    
    DFMO Trial:  June 2014
        (27 months of DFMO)
    **FINISHED ALL TREATMENT
    JULY 25, 2016


    5 years from diagnosis!!
    May 9, 2018
    ​
    5 years from frontline!! 
    June 9, 2019

    IN REMISSION:  pending
    (waiting for 5 year mark from maintenance). 

    Benign Tumor:  June 2019

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