Camden's Crusade
Follow Camden's journey and help him fight Neuroblastoma
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Update

11/7/2013

 

It has been a long day with ups and downs, but at this point we have been able to wean his oxygen to 4 liters, with fluctuating elevation of his heart rate and respiratory rate.  His chest x-ray was slightly worse today as compared to yesterdays.  He is maintaining 97-100% oxygen saturation, so hopefully the other two will stabilize too and tomorrow we can decrease oxygen again (if not tonight).  We just do not want him "working hard" to breathe.  We are 32 hours into this...praying the roller coaster ride is over...

Other than going to radiation, Camden did get out of bed to paint on his isolation doors (with Emma) and our Hole in the Wall Gang friend. Camden and Brian painted an awesome Star Wars scene and Miss Emma did an amazing, messy but beautiful abstract.

Gramma Nanc
11/7/2013 10:52:03 am

Ron ,Jess Camden and Emma sending Love Hugs and Prayers that Camden moves in a foward motion of healing and gets stronger each day ,I know God will continue to hear us !! ooxxoxx


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    Picture
    Mommy & Me

    Mommy

    She's going to keep everyone up to date about my progress.  Isn't she the best mommy ever?

    Mommy thought long and hard about my new website.  She thought about protecting me and not putting my hospital pictures online.  But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious.  My mommy wants to make sure that other kids don't go through this and that their parents know what to look for.  My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight.  I love them so much!

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    Diagnosis:  May 9, 2013
    Surgery:     September 2013
    Transplant: September 2013
    STRICT ISOLATION UNTIL
              January 2014
    Radiation:   November 2013
    Antibody:    January 2014
    END OF TREATMENT                
              June 9, 2014    
    DFMO Trial:  June 2014
        (27 months of DFMO)
    **FINISHED ALL TREATMENT
    JULY 25, 2016


    5 years from diagnosis!!
    May 9, 2018
    ​
    5 years from frontline!! 
    June 9, 2019

    IN REMISSION:  pending
    (waiting for 5 year mark from maintenance). 

    Benign Tumor:  June 2019

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