Camden's Crusade
Follow Camden's journey and help him fight Neuroblastoma
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Wed, Jan 1, 2014

1/1/2014

 

Day 3, by far was the best yet: but by far not easy.  Camden finished his medication at 7:45. He is puffy head to toe from being fluid overloaded, he has had coming and going body rashes and fevers...his arms, hands, legs and feet ache, he has urinary retention....BUT I just asked him how he felt, and in a slurred, sleepy/sedated voice, with swollen cheeks and heavy eyes, he answered, "I feel great!"  He is in bed with 3 lines inserted into his chest, pumping medications and fluids!  I promise you that not one of us would have answered that way.  Continued prayers for a smooth night and a perfect day 4 tomorrow for our amazing superCAM!!

Tara
1/1/2014 10:39:06 am

Way to show them who's boss, Camden!! 2014 is all yours, buddy. :-) Much love and continued prayers...

Aunt Donna
1/2/2014 04:51:10 am

Prayed all night after talking to you. He is such an amazing child and sure has taught us all how to be better people and to be positive even when you are feeling your worst. Praying Day 4 goes well for him and he can go home soon. love you so so much.


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    Picture
    Mommy & Me

    Mommy

    She's going to keep everyone up to date about my progress.  Isn't she the best mommy ever?

    Mommy thought long and hard about my new website.  She thought about protecting me and not putting my hospital pictures online.  But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious.  My mommy wants to make sure that other kids don't go through this and that their parents know what to look for.  My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight.  I love them so much!

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    Diagnosis:  May 9, 2013
    Surgery:     September 2013
    Transplant: September 2013
    STRICT ISOLATION UNTIL
              January 2014
    Radiation:   November 2013
    Antibody:    January 2014
    END OF TREATMENT                
              June 9, 2014    
    DFMO Trial:  June 2014
        (27 months of DFMO)
    **FINISHED ALL TREATMENT
    JULY 25, 2016


    5 years from diagnosis!!
    May 9, 2018
    ​
    5 years from frontline!! 
    June 9, 2019

    IN REMISSION:  pending
    (waiting for 5 year mark from maintenance). 

    Benign Tumor:  June 2019

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