Camden's Crusade
Follow Camden's journey and help him fight Neuroblastoma
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What a day.....

9/9/2013

 

Sorry for the delay... We are living on a roller coaster.  The delay was discharge and our 1.5 hour ride home : )

Yesterday's post said "We couldn't be any more proud!"...he proved us wrong!! We are happy to announce Camden kicked butt again...we ARE HOME.  5 days after an 8 hour surgery...we are home in good shape.  Camden still has abdominal discomfort, but we all would!  Another page turned!  

My moment of heart break and panic was his bone marrow biopsy came back positive.  Through conversation with the transplant doctor, this could indicate requiring more chemo before transplant or coming off of his current treatment plan.  My happiness of doing so well with surgery was crushed.  I cried and said the rosary all the way home from Boston.  

So...initially Camden's bone marrow was >90% affected with cancer.  Today's results are <5%......however present, he shows significant reduction of neuroblastoma in his bone marrow.  I just spoke with his oncologist in Boston who has me resting assured.  We are waiting to speak with his CCMC oncologist.  

   

We have all week to pray for Friday's scans and for Camden to be ready for next Monday's bone marrow transplant!

Thank you crusaders!! As always, much LOVE!!

Gramma Nanc
9/9/2013 10:02:27 am

You got this Cam stay super strong !! prayers for great test results friday !!! big hugs to you ,mom & dad :)

Tara
9/9/2013 11:24:30 am

Perhaps a new path (a new treatment plan) or continuing on his current one, prayers that all roads lead to the same place - remission and a cure! You are amazing, Cam, and we're all praying!!

Aunt Donna
9/10/2013 02:50:38 am

He has come so far. So sorry the scan wasn't 100% negative but we will get there with everyone continuing to pray. So happy you were able to come home earlier then expected. There is no place like home and he will heal better at home. Our love , thoughts and continued prayers for a complete healing. Remember EXPECT A MIRACLE. XXXOOO


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    Picture
    Mommy & Me

    Mommy

    She's going to keep everyone up to date about my progress.  Isn't she the best mommy ever?

    Mommy thought long and hard about my new website.  She thought about protecting me and not putting my hospital pictures online.  But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious.  My mommy wants to make sure that other kids don't go through this and that their parents know what to look for.  My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight.  I love them so much!

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    Diagnosis:  May 9, 2013
    Surgery:     September 2013
    Transplant: September 2013
    STRICT ISOLATION UNTIL
              January 2014
    Radiation:   November 2013
    Antibody:    January 2014
    END OF TREATMENT                
              June 9, 2014    
    DFMO Trial:  June 2014
        (27 months of DFMO)
    **FINISHED ALL TREATMENT
    JULY 25, 2016


    5 years from diagnosis!!
    May 9, 2018
    ​
    5 years from frontline!! 
    June 9, 2019

    IN REMISSION:  pending
    (waiting for 5 year mark from maintenance). 

    Benign Tumor:  June 2019

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