It has been a long time. You guys, Camden is getting so big. I wanted to share with you that he got braces on Friday. To many, its just braces. To me: it is another milestone. Braces to correct ADULT teeth. I look at his face and just melt. I am so proud of the young man he is. I also think of you guys every single time scans start sneaking around the corner. That scan-xiety is still there. Its real. I think of you...because it is YOU that held me/us up and kept me/us from falling during so many of Camden's battles/obstacles. I am sorry that these posts come in times of need. Scans are just a confirmation of what we already know. He is a living miracle. He is healthy. Claim it with me.
When we aren't here posting, it is because we are maximizing our blessings and life's gifts, enjoying our family time, building memories, teaching lessons, and growing from our mistakes. Camden's scans are next week. 3 days of hospital visits: Tuesday/Wednesday/Thursday. His big body scans are on Valentines Day. Send Camden some love that morning. (I know you will). He will be in scans at 8 am.
AND....his braces are gold. YUP gold. It took a lot of convincing but I gave in. He is ready for any rap video. Who wants to make a Camden rap video? He did promise that this would be the only time he gets any gold accessories put in his mouth. Oh well...don't sweat the small stuff. He's got a cute face either way. One more round of 6 month scans and then we graduate to 1 scan, ONCE a year? Did I hear myself say that? Thank God!!!
🎗🎗 CHILDHOOD CANCER MONTH! 🎗🎗
In honor of Camden and our circle of pediatric oncology friends who have won the fight, are battling for their lives, our those near and dear to our hearts that have earned their wings, we have decided to re-offer our Camden's Crusade shirts. Shirts will be available for sale during September for $10.00 each. Let's honor Camden this month!
Shirts can be delivered if necessary or shipping cost may be added. Available sizes: Youth S,M,L or Adult S (limited),M,L,XL,2XL,3XL
SUPERCAM bracelets: $2.00 each (Adult or Child)
It all starts with awareness!
So, I am having a hard time figuring out how to upload Camden's clear scans video. Apparently I have to upgrade his website, etc. So in the meantime, know that we received preliminary results that his scans were unchanged from last time (clear). About a week later, we found out that his heart test improved from last year. We still have not heard any results from his pulmonary function test (yes, believe it...not impressed). Hearing test: they always give us the results while we are there: that is unchanged. Camden is doing awesome. He started FOURTH grade yesterday and I just know that he will have a great year. He has an amazing teacher and will make lots of new friends this year. He is still playing soccer and loving it. UConn Hockey is starting up soon and we will be there...
Little Emma started FIRST grade. Can you believe it? She had a great first day back too! Emma is doing cheerleading and hip hop this year. We continue to be grateful everyday of the normal things that Camden and Emma participate in. Thank you for your continued love, prayers, and support.
Well, we now know that Camden has the inherited selective hearing gene. Despite me freaking out that we'd be leaving with a script for hearing aids, I was fooled. Camden passed his hearing test. It was explained that most of us speak at a 50-60 dB. Camden had 96% accuracy with R and L ears at 35 dB with 12 year old vocabulary. His high frequency hearing loss still exists, but it just means he can't hear the birds chirping as well as we can. No intervention required other than visual compensation.
*****UPDATE: We arrived for his isotope injection at Hartford Hospital. We weren't on the schedule. Neither was our scan for tomorrow. So we have been rescheduled for injection on Wednesday afternoon and scan Thursday morning. I believe things happen for reason and the right people will be there when we need them the most!
CONFIRMATION of HEALTH SCANS!! Camden will have a BUSY week. Please keep him in your thoughts and prayers!
-Monday: Audiology and Isotope Injection for body scan
-Tuesday: Body Scan, Pulmonary Function Test, and Clinic for blood and urine analysis.
-Wednesday: day of giving thanks
-Thursday: EKG, ECHO, CT scan, MRI x 2 for abdomen and pelvis
This workup is Camden's ONE YEAR OFF TREATMENT tests. 4 more healthy years and we can claim CANCER FREE! We got this. Thanks for your prayers and support!
Happy 9th Birthday to our sweet boy! There are no words to describe the depths of what you mean to us! Watching you grow has been an amazing blessing and you couldn't possibly make us any more proud! Wishing you another healthy year ahead~surrounded by those whom bring you lots of happiness, smiles, laughter and love!
Friends and Family,
We are grateful for the upcoming celebration of faith, love, trust and believing in miracles. Camden will make his First Communion on May 13. Several have asked to join us at mass to witness Camden fulfill his holy sacrament.
Scan days are the longest days! Camden has a message for you! Thank you for your unwavering support, love and prayers. We couldn't get through this without you all! Much love!
Scans are complete, other than an MRI on this Sunday, 8am. We had clinic (labs and urine analysis, an audiology test, CT Scan and MIBG).
And we wait....we wait for the phone call that predicts our future. We pray to hear the word NED (No Evidence of Disease). Please lift us in prayer. There's no turning back...Camden is our miracle. We believe, we trust, and we are thankful for his healing and health. PLEASE send your blessings of peace and NED! As long as there are no concerns on the MIBG scan, we hopefully will know results tonight. If there are concerns, we will have to compare the CT scan and MIBG to the MRI (Sunday) and we won't know results until Tuesday. Thank you! Much love!
She's going to keep everyone up to date about my progress. Isn't she the best mommy ever?
Diagnosis: May 9, 2013
Surgery: September 2013
Transplant: September 2013
STRICT ISOLATION UNTIL
Radiation: November 2013
Antibody: January 2014
END OF TREATMENT
June 9, 2014
DFMO Trial: June 2014
(27 months of DFMO)
**FINISHED ALL TREATMENT
JULY 25, 2016