Cam and I were just interviewed by channel 8: oh boy......that is at 5:45
Stay tuned....Fox 5:00p and 10:00p....Camden "might" be on tonight with the Batman that was visiting CCMC!
(4:00p) Camden is still recuperating. He has some discomfort and weakness. We are back to building up his strength and appetite again. We are still doing these daily shots (which have been going well). Tomorrow he starts his chemo pills again (3 in the AM and 3 in the PM). We have clinic tomorrow and more than likely we will be spending a good amount of time there, as it is SUPERHERO day! Batman, Spiderman, and Superman will be visiting and also washing windows, etc! You know Cam will be going in full costume. We have some very exciting news coming up! I should find out more this week; stay tuned!!! Hope you all are having a great weekend!!!!
We are weaning the morphine and PLEASE PLEASE PRAY THAT CAM'S SHOT THIS MORNING IS SAFE AND HE IS REACTION FREE!!!! With mixed feelings I have packed up our room.....821 has been our home away from home for many many months.... We know that it is not a goodbye to our friends and extended family here, but we are forever grateful for the quality care and the relationships we have formed here on the inpatient floor. Thank you MS8! We are very excited to head back to OUR real home and pack away our suitcases...
(9:40a) Camden has been sleeping a lot! We just finished day 3 of chemo this morning and today is DAY 4 OF 4......(Round 5 of 6) Chemo will begin at 12:00. We are back on the oncology floor. They have held his shot for today and the past 2 days and everything is stable. The shots will resume tomorrow once all of his chemo is complete at half dose and prayerfully he will not have that localized reaction. The thought is that the combination of chemo and the shot caused the airway problems. Prayers continue for a safe and smooth day today (and that this excessive sleepiness is purely nothing but exhaustion)!!!
(7:40a) Camden and I had a great night. We both slept well. He was not coughing. He is sitting here in bed coloring batman pictures....chomping down beef teriyaki. Chemo will be done in 20 minutes (8:00am). Thanking all of you for your extra prayers and Thanking God for helping us...we made it through day 2. Day 3 chemo starts at 12:00. Keep praying!!
(3:30p) So we settled into the ICU very roughly... As Camden was beside himself...in the sense of not accepting change, feeling punished and hating the transition. We started chemo at 12:00 and it will run for 20 hours (as long as we do not hit any bumps). I didn't foresee our last treatment going like this, but we are doing everything they tell us to. Praying for a smooth remainder of today and tonight. Chemo is finished at 8:00 am tomorrow morning.
From 3:30 to 9:00 pm yesterday we did great! 9:00 the coughing starting again (mildly and escalated up, mixed with Camden's frustration~crying, increased anxiety, etc). It was a very long and difficult night. Neither one of us slept....maybe 4:00 am to 6:00 am (give or take). We managed symptoms and were able to finish his treatment at 5:15 am today. Now it is day 2 and we are waiting to start his chemo but also waiting for our ICU bed before chemo can start. I can feel my strength crumbling feom under me. Please lift us in prayers today...please, please, please.....Jesus guide us, stay with us and protect us!
She's going to keep everyone up to date about my progress. Isn't she the best mommy ever?
Diagnosis: May 9, 2013
Surgery: September 2013
Transplant: September 2013
STRICT ISOLATION UNTIL
Radiation: November 2013
Antibody: January 2014
END OF TREATMENT
June 9, 2014
DFMO Trial: June 2014
(27 months of DFMO)
**FINISHED ALL TREATMENT
JULY 25, 2016