Our donation collections for Connecticut Children's Medical Center begins now. Last year, we did an AMAZING job with collecting DVDs. This year, we are going to try to keep those kiddo's feet warm. I remember many of days, trying to convince Camden to walk the hospital hallways, with every effort of keeping his strength up. I know a cool pair of spiderman slippers would have done the job of getting him up and moving. We will expand our donations to additional children's hospitals, depending on our final collection count. Merry Christmas 2014! 💌🌲❄️⛄️❄️🌲💌
For those of you attending Camden's "Make-A-Wish" wish granting party. This is the map layout for the event and parking. There will be police assistance and coned off areas for parking. All attendee's will be hidden from sight when Camden arrives. We will go into Camille's restaurant where Spiderman will have his first personal interaction with Camden. At that point, Camden and Spiderman will go outside. At this point you will assisted to be in the necessary places to help cheer on Camden, while staying clear of the several videographers that are helping capture Camden's special day. Spiderman and the villain are stunt guys from NYC so we are hoping they have some cool tricks up there sleeves.
Lab results are in and everything looks great. Next week we will get the urine results. Praying for nice LOW numbers on those ones! Thank you everyone for your prayers and support!!!
Camden is now at school and I am just settling in from our clinic appointment. Camden was a MESS MESS MESS this morning. He DID NOT want to go to the hospital. He kicked, screamed and cried. "Mom, why can't they just give the medication to the parents so that the kids can take it all at home?" It breaks my heart...I WISH it were that easy. But we went and he was amazing, like always. Today, we had a repeat ECHO and it showed the same, stable thickening in his heart where the blood clot attached. The good news is, it is stable. I spoke with the cardiologist and he said, based on Camden's history, they are watching that "spot" very closely, but if Camden was a new patient, then it would not be alarming at all. It may just be his anatomy. I asked that they compare these studies to the "prior to chemo line that was placed and prior to treatment studies," just to see if in fact, we are monitoring something that was ALWAYS there. I do not think it is coincidental that there was a gum ball sized clot in that spot. I think it is like a scar tissue (trauma) from the clot. Anyway, that is good and we will continue to monitor it as per their recommendations. Camden's vitals are good. He is 58 pounds (my biceps and hurting back agree). We will get his lab results later day and his urine results (neuroblastoma specific) next Monday. His next appointment is his 6 month post treatment scans (Dec 15 and 16th for his CT Scan, MIBG scan, audiology, etc). Lets amp up our prayers. This is always stressful, but post treatment months 6-12 are going to be the hardest. Please carry us in prayers. Thank you! -much love!
Camden and Emma opened their eyes yesterday to a yard full of snow. Most definitely they played in the snow for about 30 minutes before school. Everyone had a good day yesterday. On our way to the UConn hockey game in Watertown last night, we stopped to get a quick bite to eat. We ended up meeting a couple. I try not to always bring up the "cancer" thing. Sometimes in a typical conversation, it is hard to make pretend that we are a normal family. Something told me to tell them and I am glad that I did. The wife promised me her prayers for Camden, but not only her prayers, but those of her grandchildren and her prayer warrior friends. God is good and works in mysterious ways. Camden was heartbroken that UConn did not win the game. He walked out with tears his eyes and a frown on his face. NEVER SURRENDER!! Together, we will CONTINUE FIGHTING!!
Camden had Friday off from school. He and I took a trip up to Sturbridge, MA to our favorite St. Anne's Shrine. We spent about an hour and a half there, walking the stations of the cross, visiting the Saints, and of course Jesus on the cross. We have so much to be thankful for. Always praying, always counting our blessings, never taking a moment for granted. We were happy to see Camden's bracelet was still on Jesus' feet. Camden added another, just in case! I had Cam's parent-teacher conference, which went well. I am glad to know he is doing well academically and socially. We had a family date night at the movies, which was lots of fun!!!
She's going to keep everyone up to date about my progress. Isn't she the best mommy ever?
Diagnosis: May 9, 2013
Surgery: September 2013
Transplant: September 2013
STRICT ISOLATION UNTIL
Radiation: November 2013
Antibody: January 2014
END OF TREATMENT
June 9, 2014
DFMO Trial: June 2014
(27 months of DFMO)
**FINISHED ALL TREATMENT
JULY 25, 2016