We had clinic and scans last week. The MIBG scan was negative. YAY! By the MIBG results, Camden remains clear of any disease. The CT Scan highlighted 2 areas of concern in his liver. We had a MRI on Thursday night to get a clearer image of what these two areas could be.
His urine results for Neuroblastoma markers are completely normal (very low). The MRI results were inconclusive. There are still these two areas in the liver that are being evaluated. His oncologist reports that although the areas are not suspicious for NB, we have not been able to rule out metastatic disease, ((although we suspect it is not)). We will be following up with a liver specialist who will have Camden complete an additional, more specific MRI to look at the arterial vascularity of the liver. This doctor will also determine if further tests (ultrasound, biopsy, or simply monitoring) are recommended. We hope to have an appointment in the books, if not the consultation complete before Thanksgiving. I truly believe that this is just another speed bump and the results will be benign. I am hanging onto the original diagnosis that I thought it was after the CT Scan. (diagnosed by me: Camden's Momcologist). Focal Nodule Hyperplasia. Side note: Ron and I have learned a tremendous amount of information from the NB FB support group. I cannot take the credit for that diagnosis name, but it is in fact very common. I wish there were easier ways to get to the bottom of this...for Camden's sake. There are pros and cons with living under a microscope. It is awesome to have a close eye on Camden, but we will also always know everything about him...things that could be normal will always be a big deal. It is a constant reminder to live life to its fullest. Don't sweat the small stuff. Cancer is evil. God is the ultimate physician. Camden's a superhero. We got this. Keep praying! Bet your bottom dollar, Camden's rolled up with essential oils: healthy liver function and healthy cells....As always, much love and massive amounts of gratitude for your endless support and prayers!