Good news!!!!!!! Thank God!!!!!!!! The labs that are neuroblastoma specific came back low and PERFECT!!!! (Breathe again)! He is vitamin D insufficient, which i was worried about because of his bones are on CT scan are showing damage still. Going to get him on a supplement. Vit D range is 30-100 and he is 25. That we can handle! Thank you so very much for your prayers! Waiting for the call regarding last weeks blood draw (more specific to neuroblastoma). I could vomit right now. Prayers going up..... I have so much to say this morning: I am going to try to keep it brief.
~Camden's eyes are better, the swelling from the styes have subsided. I pray that he will not get anymore. ~We had a great day yesterday at our princess warrior Quinn's end of treatment party. Please keep Quinn in your prayers, as she still have a few chemo's left. The party was amazing. Cam signed a monster truck (dedicated to those fighting cancer), he met and received an autographed picture and baseball from retired Red Sox pitcher, Dennis Oil Can Boyd. The kids had a blast: there was a whole lot of love there yesterday!!!! ~Uconn Men's Ice Hockey played in VT last night, even though we weren't there, we streamed the game to Ron's parents TV, had nachos, and cheered them on from home. The kids were screaming out LETS GO UCONN and screaming out the guys names. It was cute. The bad news is that we didn't win. BUT, we will!!!! ~Last night I could not sleep: the knots in my stomach kept me up ALL NIGHT! Several posts ago, I commented on how I was praying for those families who know that their time is limited with their child. Last night, we lost another warrior. Please extend your prayers to Dante, who is flying high and his family who is currently heartbroken. AND, another warrior: who I spoke of in the same post, whose mother introduced to me the supplement for Camden, they discovered that their son, Landon, has relapsed in his bone marrow. His scans 5 weeks ago were clear. Please pray that Landon will endure the upcoming treatments and reach a lifetime of NED. ~PLEASE, we all know how strong Camden is, and how we have been blessed through this unbelievably difficult journey, but lets up our prayers that we will continue to only hurdle these little things, (styes, blood clots, etc). I am staying focused and believing that we will continue to be seen through this. Camden's cancer is HIGH RISK, meaning, he is at a HIGH RISK for relapse. Statistically, the duration were most kids relapse is up to 18 months after treatment. In those 18 months, months 6-12 after treatment is the highest of highs. We just had his month 4 appointment and on Dec 15th and 16th, we will be having his 6 month scans. December through June....we have to turn things up....I am counting on you to help me through this. So, I am glad to have had the chance to catch up with Camden's oncologist today. I was able to get many questions answered regarding his recent tests. We ordered some additional blood work and I will be exploring some supplement options (that he approved today) for supporting the healing of sclerotic bone disease in Camden's spine. A fellow momcologist introduced to me organic, whole food supplements that seem to be really good and came recommended to her by her son's naturopath. Cam had to leave two urine samples, had two needle sticks for blood (which was ugly and painful and everyone in clinic heard him screaming) and then he also screamed through a flu shot. We met with our DFMO clinical advisor, hit up the gift shop, and planned on finishing off the last few hours of school. A classmate of Cam's went home with a fever today, which means Cam is blessed to finish off his day doing schoolwork with M-O-M!!!!! No results of anything yet, but I will let you know when I hear something. AND the stye is still red and inflamed. We will continue with moist heat and if it persists, i will take him to the eye doctor for cultures. So over the past week Camden has had styes alternating from the right and left eyes. This morning his eye was swollen shut. His eye lid was enormous. He was scared... It broke my heart. He is home today from school. We are doing warm compresses. Tomorrow we have his monthly clinic appointment, (physical, labs, urine tests, chemo pill count, etc). Please wrap Camden in prayers that these repetitive styes go away and stay away and that his appointment goes well tomorrow...that all of his tests results are PERFECT! Thank you!!! So over the past week Camden has had styes alternating from the right and left eyes. This morning his eye was swollen shut. His eye lid was enormous. He was scared... It broke my heart. He is home today from school. We are doing warm compresses. Tomorrow we have his monthly clinic appointment, (physical, labs, urine tests, chemo pill count, etc). Please wrap Camden in prayers that these repetitive styes go away and stay away and that his appointment goes well tomorrow...that all of his tests results are PERFECT! Thank you!!! So over the past week Camden has had styes alternating from the right and left eyes. This morning his eye was swollen shut. His eye lid was enormous. He was scared... It broke my heart. He is home today from school. We are doing warm compresses. Tomorrow we have his monthly clinic appointment, (physical, labs, urine tests, chemo pill count, etc). Please wrap Camden in prayers that these repetitive styes go away and stay away and that his appointment goes well tomorrow...that all of his tests results are PERFECT! Thank you!!! (5p) We just got word from oncology that the area in Camden's heart where the blood clot was is "stable." There is still a noticeable difference (thickening) where the clot attached to the value, but the good news is that it isn't worse. We repeat another ECHO in one month. No shots for the interim. Thank you for your prayers and support. I am very disappointed to say that despite our appointment being this morning, the cardiology and oncology departments failed to communicate with each other, leaving us without results until Monday. Something so simple could not happen, even with the follow up phone calls requesting results. Now we wait and wonder....praying that the blood clot is gone. |
MommyShe's going to keep everyone up to date about my progress. Isn't she the best mommy ever? Archives
September 2021
Diagnosis: May 9, 2013
Surgery: September 2013 Transplant: September 2013 STRICT ISOLATION UNTIL January 2014 Radiation: November 2013 Antibody: January 2014 END OF TREATMENT June 9, 2014 DFMO Trial: June 2014 (27 months of DFMO) **FINISHED ALL TREATMENT JULY 25, 2016 5 years from diagnosis!! May 9, 2018 5 years from frontline!! June 9, 2019 IN REMISSION: pending (waiting for 5 year mark from maintenance). Benign Tumor: June 2019 |