So we are trying to make this week as fun as possible! We went on a shopping spree at Toys R Us, we had a date night where we all went to the movies to see Frozen 3D...we enjoyed normal kid things, like swinging, riding around in his jeep, playing outside with lightsabers, hockey in the driveway, jumping on beds, jumping in puddles, playing Just Dance on XBox Kinect...it is such an amazing feeling to have an active 5 year old in the house...soon to be taken from us again as we prepare for a 2 week admission for another treatment. Again, we pray Camden's body can tolerate the antibody protocol...that these medications will work effectively at killing EVERY ABNORMAL CELL! We pray Camden's organs (heart, lungs, kidneys, liver, etc) are spared damage. Please Lord completely heal Camden and keep our family together for a lifetime of love, laughter, and happy...healthy memories!!
Today the thought of a relapse horrifies me....we have come so far in defeating this beast! Knowing the outcome of a relapse is poor; makes me enjoy TODAY that much more! Praying for Camden's abnormal cells and cancer to go away and never return. Praying for Camden's miracle and strength for me and my family to leave our worries and fears at the door and truly enjoy each moment. Please Lord heal Camden completely! Amen Our fantastic weekend hit a few major bumps. Ron spent all day Saturday in the emergency room and although he needs follow up care, we hope he is soon on his way to a recovery. Saturday night at the Soucy's was very nice. It felt really strange being inside someone else's home (as we have been in lock down at ours). Sunday morning started off great, as we prepared to be at the 8:00 mass for Camden and THEN Emma somehow surprisingly enough got locked into the jeep, nicely and securely fastened in her car seat. Camden, Nana, and I made it to mass in time, but Daddy, Papa, and Emma had to wait to be rescued by the fire department. Thank you to the hand full of men who kindly got my beautiful baby out of the locked car (THAT SHOULD NOT HAVE HAPPENED, but it did).
We were so amazingly happy to see so many of you at church this morning. It warmed our hearts. So many of you traveled far to be with us, opposites sides of CT, VT, NYC, etc...we appreciate it so much. Mass was beautiful. Camden and I walked the gifts down the isle to the priest and at that very moment when Camden handed the gift of the bread to the priest, rays of sunlight shined through the stain glass windows (the only time it happened throughout the mass). I did not see this, but many people seated throughout the church did see it. I prayed for a sign today. Thank you Jesus and Blessed Mother for being there with us. We continue to pray for Camden's miracle of a lifetime of health and happiness. And again, a special thank you for sharing that moment with us. and...last, but not least, HAPPY BIRTHDAY DAD (Alan Talamini)....we love you very much! Camden walked down the stairs from 2nd floor to 1st this morning with only holding my hand. I have been carrying him since his last treatment!! He is getting stronger!! Today is going to be a great day, I can feel it!! This Sunday, the 8:00 am mass at St. Edward's Church in Stafford Springs will be dedicated to Camden; as we gather in prayer for Camden's complete healing. We hope to fill the church with healing prayers, love, support, and extraordinary strength for all of us to conquer these next challenges. This will be our first "outing" in public and however nerve racking for us to expose Camden to so many people, we feel we will be fully protected by the grace of God. Please understand, our visitation/socialization will be extremely limited, so please, please do not take it personal...but just knowing we are surrounded by our family and friends will be overwhelmingly comforting for all of us.
Today was a great day...my dad drove us into clinic for a 9:00 am appointment, in every effort for us to arrive safely while traveling the icy roads in Tolland. Camden's blood counts were awesome and we dodged a blood transfusion. His aches and pains, lethargy, etc.. are completely normal with respect to the marathon his body ran last week. We are battling the 6 pills a day and the 3 liquid medications and the 1 shot a day and the 4x line flushes, (in addition to routine cap changes and dressing changes)....we have a full plate just to get through the day taking meds and doing our nursing care...but as you all know...CAMDEN ROCKS and he is such a trooper. We continuously thank you for your support and we hope that all of you had a happy, safe, and great day today too!!! So I have been consumed by a neuroblastoma support group that I joined. It is amazing (and extremely sad) to see how many others are walking in our shoes and feeling our pain, BUT terrifying to see how many beautiful children who lose their battle against this nasty cancer. I have learned some great things but will scan what I read too. I have made it this far with the love and support from my crusaders....and I am counting on you all to get me through ?? June 2019.... Camden has belly, leg, and neck pain. It comes and goes throughout the day and we often carry him to and from...his appetite is slowing coming back. He has a lot of daily meds and tomorrow we start 2 more pills in the AM and 2 in the PM. Pill swallowing hasn't been going so well....BUT this new pill is PERTINENT that he takes...we need to kill these cancer cells!! Prayers for Camden's aches and pains to subside, prayers for successful pill swallowing, and as always our expected complete healing! Lord, hear our prayers!! We came home last night. I was hoping that we would have had a restful night but it was just the opposite. Camden endured such a challenging week and he is still trying so hard to bounce back. His entire body hurts. Praying he feels better from the top of his head to the soles of his feet...we pray that he feels like all other healthy 5 year olds... Thank you everyone and please continue your prayers.... We are still here. Camden is doing good. I think we may be staying tonight too due to the 24 hour fever monitoring. His last fever spike was last night. It has been a much needed quiet day for resting. |
MommyShe's going to keep everyone up to date about my progress. Isn't she the best mommy ever? Archives
September 2021
Diagnosis: May 9, 2013
Surgery: September 2013 Transplant: September 2013 STRICT ISOLATION UNTIL January 2014 Radiation: November 2013 Antibody: January 2014 END OF TREATMENT June 9, 2014 DFMO Trial: June 2014 (27 months of DFMO) **FINISHED ALL TREATMENT JULY 25, 2016 5 years from diagnosis!! May 9, 2018 5 years from frontline!! June 9, 2019 IN REMISSION: pending (waiting for 5 year mark from maintenance). Benign Tumor: June 2019 |