Camden's Crusade
Follow Camden's journey and help him fight Neuroblastoma
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Fri, Feb 28, 2014

2/28/2014

 

And we are HOME!  Camden is soundly sleeping on the couch with his Superhero pillow and blanket!  He acquired a cold at some point (like being kicked while your down)...he has a stuffy nose, achy, and just beat up.  A flu test was done and thank the heavens it was negative.  We have 2 weeks to rebound before the dreaded round 4!  

****this coming Tuesday is his bone marrow biopsy**** starting my prayer requests now!  Praying for clear bone marrow and no cancer.  We will also be having his body scan coming up, but no date as of yet! Praying that also is completely clear!  In Jesus' name...thank you and Amen!!!  

Thu, Feb 27, 2014

2/27/2014

 

Round 3 is DONE!  Thank you for your support and prayers!  Camden is doing well.  We had ups and downs today, but our nurse (Tara <3) made it a super special day for Cam!

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Thu, Feb 27, 2014

2/27/2014

 

Cam:  "mom"

Me:  "yes, sweetheart"

Cam:  "this is how much i love you.... everyday...when you are right here, i miss you....and even when you are laying right here with me (which is ALL OF THE TIME)... i still miss you! I love you that much mom!"

<3 <3

I feel the same way my love....

Thu, Feb 27, 2014

2/27/2014

 

Lets Go Day 4 of 4!!!!!!!  Camden had a good night...his fever was .01 away from the oncology cut off of cultures and antibiotics...but we dodged it!! 


Okay chemo, we need to talk....this is important!  You must seek out and find every cell hiding in Camden.  I know your cells change form and hide and become chemo resistant!  I know how difficult it is to kill you, but seriously enough is enough...Only ONE of your darn cells remaining is the difference between life or death.  Cam and family have a lot to do over the next decades. Cancer just surrender yourselves...please!  We love Camden so much and we want to grow old with him!  Chemo: I will be watching you for 10 straight hours....don't mess with me!

Wed, Feb 26, 2014

2/26/2014

 

Just saying....today is an extremely LONG day and I am EXHAUSTED!  Cam is holding on for this ride we are on.  They added the PCA button for break through pain.  He started screaming out with belly discomfort.  I hate this....medication please kill every cancer cell, every abnormal cell, and every potential cancerous cell.  Stay with us Jesus...we need you!  Prayers for Cam!!!

Wed, Feb 26, 2014

2/26/2014

 

Before Day 3 starts, Camden and I wanted to remind everyone to be generous with your compliments.  We are awake and watching Batman (6am) Prayers for a great day 3!!!

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Tue, Feb 25, 2014

2/25/2014

 

Day 2 chemo is in!!!  WooHoo!  Camden is truly our biggest hero!  Now the weaning of all the other meds.  He will be getting a blood transfusion tonight and he is slowly getting a fever BUT chemo is DONE!  Feeling really very thankful and extremely happy!  2 more days!

Tue, Feb 25, 2014

2/25/2014

 
Day 2:  All meds are up and running....10 hours of chemo (9a-7p).  Praying for a protected day!

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Mon, Feb 24, 2014

2/24/2014

 

Day 1:  medication is complete.  Now hopefully he will not have much pain and the morphine and supportive meds will be finished at 9:00p.  3 more days....thank you God for getting us through today.  Camden actually had a fairly good day.  Hallelujah!!

Mon, Feb 24, 2014

2/24/2014

 

Pain medications starting soon and antibody at 9:00.  Praying for an uneventful day today!  Please Lord and Blessed Mother hear our prayers and stay with Camden as we begin another intense week of treatment!

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    Mommy & Me

    Mommy

    She's going to keep everyone up to date about my progress.  Isn't she the best mommy ever?

    Mommy thought long and hard about my new website.  She thought about protecting me and not putting my hospital pictures online.  But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious.  My mommy wants to make sure that other kids don't go through this and that their parents know what to look for.  My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight.  I love them so much!

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    Diagnosis:  May 9, 2013
    Surgery:     September 2013
    Transplant: September 2013
    STRICT ISOLATION UNTIL
              January 2014
    Radiation:   November 2013
    Antibody:    January 2014
    END OF TREATMENT                
              June 9, 2014    
    DFMO Trial:  June 2014
        (27 months of DFMO)
    **FINISHED ALL TREATMENT
    JULY 25, 2016


    5 years from diagnosis!!
    May 9, 2018
    ​
    5 years from frontline!! 
    June 9, 2019

    IN REMISSION:  pending
    (waiting for 5 year mark from maintenance). 

    Benign Tumor:  June 2019

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