Camden's Crusade
Follow Camden's journey and help him fight Neuroblastoma
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So thankful

2/23/2014

 

We had the most amazing morning...the best breakfast gathering ever!!  Great times with family, friends (new and old), and even complete strangers.  A heartfelt thank you to everyone who found it in their hearts to join us for breakfast today!  A special thank you to the Brotherhood in Action group who hosted this event for us and for one other family.  We were so happy to see all of you today!!  My heart is filled with love!!!

We will spend the rest of our day and week in the hospital, praying for a smooth week!  

February 23rd, 2014

2/23/2014

 
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Fri, Feb 21, 2014

2/21/2014

 

So, I think I could vomit.....Due to the fact that Camden had this visual response from the medication, we will start next week off at a reduced volume of medication by 50%.  If he has this reaction again, treatment is stopped and all remaining treatments are held.  This medication is most crucial for prevention of relapse which Camden is at high risk for having a relapse.  The emotions are flooding in.....please pray!

Thu, Feb 20, 2014

2/20/2014

 

Emotional roller coaster:  just got the call, no biopsy tomorrow; as we believed it to be true, it will be completed after round 3.....

Thu, Feb 20, 2014

2/20/2014

 

Drum Roll.........so his eyes are "almost" perfect!  He went from 20/100 vision to 20/25 in right eye and 20/30 in the left.  They tried fitting him for bifocals, but he totally wasn't having it. What this means for round 3, we still do not know but the ophthalmologist said it was a significant improvement, which the numbers prove.  (20/20 is perfect).  Deep breath.........

Now....quickly moving on...we were informed at 3:30 this afternoon that tomorrow at 8:30 am is his BONE MARROW BIOPSY!  Totally not mentally prepared, but it is okay!  We got this!  8:00 arrival, NPO after dinner. Results next week.  PLEASE PLEASE PLEASE PRAY FOR CLEAR BONE MARROW.....this is the ONLY place we could see remaining disease.  For all of the suffering he has endured, please Lord...give us no cancer......no hidden cells.  Please Jesus, please!!!!  Thank you for your loyalty and abundance of prayers.  We love you crusaders!!! 

Wed, Feb 19, 2014

2/19/2014

 

Ok:  the final prayer request before tomorrows appointment.  His eyes are much better, but i am worried that they are not perfect.  Tomorrow will confirm either way, but anxiety is starting to creep in being that this may effect his chemo for Monday...either a lower dose, lower rate or maybe not at all.  This chemo is extremely important.  19 hours to go before the vision test!  I know you are already praying, but please add an extra prayer for Cam's vision/eyes/pupils/ability to focus....any or all of the above!  Thank you so much!!

Opps..

2/19/2014

 

So for 2 weeks I thought today was Camden's eye appointment.  Late last night, that automated message informed me it is tomorrow.  I confirmed it and indeed it is tomorrow at 3:00.  One more day to heal those eyes!

Camden's Faith

2/18/2014

 

Camden approached me real early the other morning and asked if we could go outside to play in the snow.  I answered not yet buddy, lets have breakfast first. He proceeded to put his coat on and approached me again...saying, "you do not have to worry mom, you don't have to come too...I have God with me".....as he referenced to the small bottle of Holy Water he always carries in his coat pocket (which he did on his own). Camden believes, trusts, has faith, and independently offers his suffering to Jesus.  So much of this process breaks my heart, but Camden is teaching all of us lessons...and in so many ways I am completely proud of him!!!  Lord, please find favor in Camden, he is carrying a heavy cross!

Spreading prayers....

2/16/2014

 

Checking in with all of our 50 states and 24 countries to make sure everyone is still praying for Camden's complete healing.  Please reach out to your families and friends and encourage extra prayers for our superhero....

Camden's Challenge #2

2/16/2014

 
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    Mommy & Me

    Mommy

    She's going to keep everyone up to date about my progress.  Isn't she the best mommy ever?

    Mommy thought long and hard about my new website.  She thought about protecting me and not putting my hospital pictures online.  But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious.  My mommy wants to make sure that other kids don't go through this and that their parents know what to look for.  My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight.  I love them so much!

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    Diagnosis:  May 9, 2013
    Surgery:     September 2013
    Transplant: September 2013
    STRICT ISOLATION UNTIL
              January 2014
    Radiation:   November 2013
    Antibody:    January 2014
    END OF TREATMENT                
              June 9, 2014    
    DFMO Trial:  June 2014
        (27 months of DFMO)
    **FINISHED ALL TREATMENT
    JULY 25, 2016


    5 years from diagnosis!!
    May 9, 2018
    ​
    5 years from frontline!! 
    June 9, 2019

    IN REMISSION:  pending
    (waiting for 5 year mark from maintenance). 

    Benign Tumor:  June 2019

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