Happy 9th Birthday to our sweet boy! There are no words to describe the depths of what you mean to us! Watching you grow has been an amazing blessing and you couldn't possibly make us any more proud! Wishing you another healthy year ahead~surrounded by those whom bring you lots of happiness, smiles, laughter and love!
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Friends and Family,
We are grateful for the upcoming celebration of faith, love, trust and believing in miracles. Camden will make his First Communion on May 13. Several have asked to join us at mass to witness Camden fulfill his holy sacrament. Scan days are the longest days! Camden has a message for you! Thank you for your unwavering support, love and prayers. We couldn't get through this without you all! Much love!
****************CANCER FREE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Scans are complete, other than an MRI on this Sunday, 8am. We had clinic (labs and urine analysis, an audiology test, CT Scan and MIBG). And we wait....we wait for the phone call that predicts our future. We pray to hear the word NED (No Evidence of Disease). Please lift us in prayer. There's no turning back...Camden is our miracle. We believe, we trust, and we are thankful for his healing and health. PLEASE send your blessings of peace and NED! As long as there are no concerns on the MIBG scan, we hopefully will know results tonight. If there are concerns, we will have to compare the CT scan and MIBG to the MRI (Sunday) and we won't know results until Tuesday. Thank you! Much love! Camden is doing awesome. He is growing and maturing everyday. (you guys, I can rest my chin on the top of his head when we are both standing). Our miracle boy. How we love him so! Saturday starts his indoor soccer program again. We are looking forward to seeing him back out on the field. Cam is doing great in school. His new found love is Pokemon (which I am sure parents with children his age are facing the same).
Our Christmas was perfect. We carried on with our tradition of going to my parents house and Ron's parents house. There is no better feeling in the world than being surrounded by those who love you the most. We are very thankful and we remain complete. Cam is still going strong with UCONN hockey. I cannot explain how much Camden and Emma love these guys. They have such a profound impact on them. We have been fortunate to spend some quality time with them most recently. I will be better at sharing pictures. Camden's next scans are in February. This month is the first time EVER that we skipped a clinic appointment for routine labs. WHOA!!!! It feels weird. It scares me, but with prayers, we get by. He is healed...there is no turning back. We really hope that everyone had a wonderful holiday. 2017....such a large number!! I just can't believe it. Cheers to a FABULOUS 2017....with love, family, health and many new miracles. Thank you so much to all of you who contributed to our book collection. It left such a warm feeling in our hearts to be able to do this for the children at CCMC. We received such a caring and beautiful email and letter from CCMC recognizing our yearly donations. We couldn't have done it without you. So, thank you for your endless support. Much love,
I have to start by saying that it really frustrates me that I cannot update this page from my cellphone. i typically copy and paste FB messages from my phone and not being able to do that has really impacted my ease of posting here. Again, I am sorry. I see from the reports that we still have 100's of people checking here daily.
Camden Update: We had clinic and scans last week. The MIBG scan was negative. YAY! By the MIBG results, Camden remains clear of any disease. The CT Scan highlighted 2 areas of concern in his liver. We had a MRI on Thursday night to get a clearer image of what these two areas could be. His urine results for Neuroblastoma markers are completely normal (very low). The MRI results were inconclusive. There are still these two areas in the liver that are being evaluated. His oncologist reports that although the areas are not suspicious for NB, we have not been able to rule out metastatic disease, ((although we suspect it is not)). We will be following up with a liver specialist who will have Camden complete an additional, more specific MRI to look at the arterial vascularity of the liver. This doctor will also determine if further tests (ultrasound, biopsy, or simply monitoring) are recommended. We hope to have an appointment in the books, if not the consultation complete before Thanksgiving. I truly believe that this is just another speed bump and the results will be benign. I am hanging onto the original diagnosis that I thought it was after the CT Scan. (diagnosed by me: Camden's Momcologist). Focal Nodule Hyperplasia. Side note: Ron and I have learned a tremendous amount of information from the NB FB support group. I cannot take the credit for that diagnosis name, but it is in fact very common. I wish there were easier ways to get to the bottom of this...for Camden's sake. There are pros and cons with living under a microscope. It is awesome to have a close eye on Camden, but we will also always know everything about him...things that could be normal will always be a big deal. It is a constant reminder to live life to its fullest. Don't sweat the small stuff. Cancer is evil. God is the ultimate physician. Camden's a superhero. We got this. Keep praying! Bet your bottom dollar, Camden's rolled up with essential oils: healthy liver function and healthy cells....As always, much love and massive amounts of gratitude for your endless support and prayers! Camden is doing AWESOME! It still is such a surreal feeling to not have ANY medications (other than supplements) to give him. I have been hanging onto so many supportive drugs all of this time (morphine, neupogen, ativan, lovenox, etc)...WHY??? WHY do I have these???? I have no idea...but they are getting tossed. I am so mentally ready to put this all behind us. We have an appointment this week with Camden's naturopath. Looking forward to positive and healthy steps....detoxing and continuing to build his natural killer cells and immune system. Keep us in your prayers as we make this transitions. Much love....
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MommyShe's going to keep everyone up to date about my progress. Isn't she the best mommy ever? Archives
September 2021
Diagnosis: May 9, 2013
Surgery: September 2013 Transplant: September 2013 STRICT ISOLATION UNTIL January 2014 Radiation: November 2013 Antibody: January 2014 END OF TREATMENT June 9, 2014 DFMO Trial: June 2014 (27 months of DFMO) **FINISHED ALL TREATMENT JULY 25, 2016 5 years from diagnosis!! May 9, 2018 5 years from frontline!! June 9, 2019 IN REMISSION: pending (waiting for 5 year mark from maintenance). Benign Tumor: June 2019 |