Another great day

10/15/2013

Emma came home yesterday and it had been a long 6-7 weeks without her, but we are again a family of 4. Today was a great day...doing mommy and kid things with Camden and Emma. Tomorrow starts our clinic appointments for Camden's follow up care. I am feeling anxious to see when radiation will start.

Gramma Nanc

10/15/2013 08:55:07 am

YEAH GOD is good !! Jess so great to see you and your beautiful kids together excited for all of you !!! Camden keep up the great fight , you for sure are our SUPER HERO!! and GOD will continue to take you thru this big hugs and lots of Prayers xxooxx

Aunt Donna

10/18/2013 12:23:55 am

That picture says it all.The smiles on all of your faces makes me think that all of our prayers are being answered. The joy you must be feeling being home in your own house with your little family as well as the progress he has made in record time is absolutely part of that MIRACLE we are expecting for Camden"s cure. My heart is full of overwhelming happiness for you and Ron, Jess. GOD BLESS ALL OF YOU.

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Mommy & Me

Mommy

She's going to keep everyone up to date about my progress. Isn't she the best mommy ever?

Mommy thought long and hard about my new website. She thought about protecting me and not putting my hospital pictures online. But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious. My mommy wants to make sure that other kids don't go through this and that their parents know what to look for. My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight. I love them so much!

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Diagnosis: May 9, 2013
Surgery: September 2013
Transplant: September 2013
STRICT ISOLATION UNTIL
January 2014
Radiation: November 2013
Antibody: January 2014
END OF TREATMENT
June 9, 2014
DFMO Trial: June 2014
(27 months of DFMO)
**FINISHED ALL TREATMENT
JULY 25, 2016

5 years from diagnosis!!
May 9, 2018

5 years from frontline!!
June 9, 2019

IN REMISSION: pending
(waiting for 5 year mark from maintenance).

Benign Tumor: June 2019