(10:00 am) We are now 25 hours into our 96 hour treatment. Camden is doing well thus far. He was borderline fever (leading to cultures and antibiotics if over 100.4) but after a few hours and lots of prayers it broke and his temperature came down to normal. We continue to pray that this medication will seek out all hidden cancer cells...it only takes 1 cell left behind for another nightmare....praying and praying and praying
Here we go......Bring on Round 4....the dreaded repeat of round 2....the most horrible treatment we have faced! But we are going in strong and ready to battle! Please surround us with your prayers! This week shouldn't be as bad as next week when the two medications are combined into one treatment! God is carrying us....our feet haven't hit the ground! Prayers this treatment destroys every cancer cell, every potential cancer cell, and every abnormal cell....the remaining cells that the scans CANNOT see! Thank you for your prayers and support!! Just when you think you are going to have a nice relaxing weekend: NOT! Somehow my sweet princess picked up a stomach bug. Thanking God for my mom who picked her up and for my mother in law who held the basin for her while traveling to and from the doctors. Praying Camden and I don't get it...at least NOT going into this dreaded two week long treatment~ cycle 4. Prayers for Emma to feel better over at my parents house and prayers the rest of us remain healthy. We just got off the phone with Camden's oncologist! Camden's bone marrow results are back and they are CLEAR! CLEAR SCANS AND CLEAR BONE MARROW!!! Amen!!! He will proceed with remaining treatments and have follow up scans and bone marrow tests every 3 months for the next 2 years! After that every 6 months...etc. This is not remission. It is considered No Evidence of Disease ..... NED! We need NED for 5 years! You are our hero Camden! Thank you God! Thank you Crusaders!! As always, much love....I am going to celebrate!! So I believe the time has come....for many months, I felt I would never see the day....but it is HERE! Thank God: my sweet Camden is in need of a haircut! I will never ever forget having to shave his head because of the clumps of hair falling out. (I saved that hair with every fear of never being able to look at it or touch it again). Now, it is not long, but is growing in at all different lengths. I may cry through the entire trim, when it happens, but every tear from my face will be happy (and even happier after tomorrow ~prayerfully)!!! Bone marrow is done...we just got home. Results will be in Friday afternoon! He is sore! Prayers for cancer free results! No evidence of cancer on scans... please PLEASE continue to pray that his bone marrow is now CLEAR too! Waiting 3 more hours for biopsy!! Thank you thank you thank you!!!!! xoxo
Camden snuck in a lollipop so our time for biopsy was pushed to 3:30.... Deep breath... He is going to be starving by then!!
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MommyShe's going to keep everyone up to date about my progress. Isn't she the best mommy ever? Archives
September 2021
Diagnosis: May 9, 2013
Surgery: September 2013 Transplant: September 2013 STRICT ISOLATION UNTIL January 2014 Radiation: November 2013 Antibody: January 2014 END OF TREATMENT June 9, 2014 DFMO Trial: June 2014 (27 months of DFMO) **FINISHED ALL TREATMENT JULY 25, 2016 5 years from diagnosis!! May 9, 2018 5 years from frontline!! June 9, 2019 IN REMISSION: pending (waiting for 5 year mark from maintenance). Benign Tumor: June 2019 |