A little blood, a little urine, height, weight, a sticker, a coloring book...another morning at CCMC. Feels like we were just here. Back to the waiting game. 4 children have relapsed off of DFMO, to date it is still running at a 90% success rate. Oncologist says the most accurate data will come from those who survive 2 years off of DFMO. Looks like our clock just reset.
MommyShe's going to keep everyone up to date about my progress. Isn't she the best mommy ever? Archives
September 2021
Diagnosis: May 9, 2013
Surgery: September 2013 Transplant: September 2013 STRICT ISOLATION UNTIL January 2014 Radiation: November 2013 Antibody: January 2014 END OF TREATMENT June 9, 2014 DFMO Trial: June 2014 (27 months of DFMO) **FINISHED ALL TREATMENT JULY 25, 2016 5 years from diagnosis!! May 9, 2018 5 years from frontline!! June 9, 2019 IN REMISSION: pending (waiting for 5 year mark from maintenance). Benign Tumor: June 2019 |