Camden is now at school and I am just settling in from our clinic appointment. Camden was a MESS MESS MESS this morning. He DID NOT want to go to the hospital. He kicked, screamed and cried. "Mom, why can't they just give the medication to the parents so that the kids can take it all at home?" It breaks my heart...I WISH it were that easy. But we went and he was amazing, like always. Today, we had a repeat ECHO and it showed the same, stable thickening in his heart where the blood clot attached. The good news is, it is stable. I spoke with the cardiologist and he said, based on Camden's history, they are watching that "spot" very closely, but if Camden was a new patient, then it would not be alarming at all. It may just be his anatomy. I asked that they compare these studies to the "prior to chemo line that was placed and prior to treatment studies," just to see if in fact, we are monitoring something that was ALWAYS there. I do not think it is coincidental that there was a gum ball sized clot in that spot. I think it is like a scar tissue (trauma) from the clot. Anyway, that is good and we will continue to monitor it as per their recommendations. Camden's vitals are good. He is 58 pounds (my biceps and hurting back agree). We will get his lab results later day and his urine results (neuroblastoma specific) next Monday. His next appointment is his 6 month post treatment scans (Dec 15 and 16th for his CT Scan, MIBG scan, audiology, etc). Lets amp up our prayers. This is always stressful, but post treatment months 6-12 are going to be the hardest. Please carry us in prayers. Thank you! -much love!
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MommyShe's going to keep everyone up to date about my progress. Isn't she the best mommy ever? Archives
September 2021
Diagnosis: May 9, 2013
Surgery: September 2013 Transplant: September 2013 STRICT ISOLATION UNTIL January 2014 Radiation: November 2013 Antibody: January 2014 END OF TREATMENT June 9, 2014 DFMO Trial: June 2014 (27 months of DFMO) **FINISHED ALL TREATMENT JULY 25, 2016 5 years from diagnosis!! May 9, 2018 5 years from frontline!! June 9, 2019 IN REMISSION: pending (waiting for 5 year mark from maintenance). Benign Tumor: June 2019 |