Camden is off antibiotics, off Morphine, off many other medications and the ones we need for home have been switched to oral administration. Our final hurdle remains eating and drinking. We are hoping to change tube feeds to only 16 hours a day instead of 24 hours so he does not have to hooked up to an IV pole all day at home. I am also hoping he decides that he would rather sit at the table to eat meals with us instead of having tube feeds. He is active and conversant. We walked to the other unit today to visit our transplant friends. He did his physical therapy, his tutoring for school, and we played a few board games. Each day is getting better and better: thank God! I anoint him multiple times throughout the day and pray my baby will be healed! We are on our way....he is one strong little guy!
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MommyShe's going to keep everyone up to date about my progress. Isn't she the best mommy ever? Archives
September 2021
Diagnosis: May 9, 2013
Surgery: September 2013 Transplant: September 2013 STRICT ISOLATION UNTIL January 2014 Radiation: November 2013 Antibody: January 2014 END OF TREATMENT June 9, 2014 DFMO Trial: June 2014 (27 months of DFMO) **FINISHED ALL TREATMENT JULY 25, 2016 5 years from diagnosis!! May 9, 2018 5 years from frontline!! June 9, 2019 IN REMISSION: pending (waiting for 5 year mark from maintenance). Benign Tumor: June 2019 |