Camden's Crusade
Follow Camden's journey and help him fight Neuroblastoma
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Fri, Nov 29, 2013

11/29/2013

 

Camden (and family)...had a great day!  I am happy to say that his breathing is improving and his oxygen levels are now on the higher side of the 90's.  His heart rate is trending down also, remaining only slightly elevated.  We continue to pray that the antibiotics are the cause of this improvement and that his lungs are healing.  We are extremely thankful for our kind and very generous neighbors who are allowing us to utilize two of their portable air purification systems and who will also be researching the "just right" humidifier for Camden's needs while still minimizing the risk of mold, etc!  A heartfelt "thank you" to you!!!  We put up an artificial Christmas tree and we are NOT liking it much...its really small : ( so i think we will be searching for an alternative artificial, as we cannot have a real tree this year...

Camden, Emma, and Daddy are making cookies ; ) 

We hope everyone has a great weekend!!


Gramma Nanc
11/29/2013 11:39:15 am

Thanking God for the wonderful news !! Camden you are doing a great job stay strong !! what fun making cookies sure they were yummy big hugs & lots to be thankful for tonight :)

Aunt Donna
11/30/2013 08:41:25 am

It is so nice to hear that you are having some real family fun making cookies together as a family. Ron, you are a wonderful father and they are so lucky to have you and Jess for parents. You both work so hard to try and keep their lives as normal as possible under such heart-wrenching circumstances. You make an amazing team and we are all so proud of you We.love you all very much and praying everything turns out well next week.


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    Picture
    Mommy & Me

    Mommy

    She's going to keep everyone up to date about my progress.  Isn't she the best mommy ever?

    Mommy thought long and hard about my new website.  She thought about protecting me and not putting my hospital pictures online.  But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious.  My mommy wants to make sure that other kids don't go through this and that their parents know what to look for.  My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight.  I love them so much!

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    Diagnosis:  May 9, 2013
    Surgery:     September 2013
    Transplant: September 2013
    STRICT ISOLATION UNTIL
              January 2014
    Radiation:   November 2013
    Antibody:    January 2014
    END OF TREATMENT                
              June 9, 2014    
    DFMO Trial:  June 2014
        (27 months of DFMO)
    **FINISHED ALL TREATMENT
    JULY 25, 2016


    5 years from diagnosis!!
    May 9, 2018
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    5 years from frontline!! 
    June 9, 2019

    IN REMISSION:  pending
    (waiting for 5 year mark from maintenance). 

    Benign Tumor:  June 2019

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