July 06th, 2015

7/6/2015

Great results this morning. Cam's urine markers for neuroblastoma are really LOW! Between this and CLEAR scans: we are pretty happy over here at the Soucy/Talamini house. Also, Cam's vitamin D was dangerously low months ago. The range is 30-100 and we got him to 22 in March and increased his Vit D supplements to 4,000 IU/day and FINALLY....WE DID IT.....his level is now 75. We just couldn't be happier. Our next appointment is July 27th (my mom's birthday) and we will see what those stinking red blood cells are doing. In the meantime, Camden will continue to use his oxygenating essential oils. WE GOT THIS CRUSADERS! :) As always, you should know how important all of you are to us and we thank you endlessly for your support and prayers.

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Mommy

She's going to keep everyone up to date about my progress. Isn't she the best mommy ever?

Mommy thought long and hard about my new website. She thought about protecting me and not putting my hospital pictures online. But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious. My mommy wants to make sure that other kids don't go through this and that their parents know what to look for. My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight. I love them so much!

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Diagnosis: May 9, 2013
Surgery: September 2013
Transplant: September 2013
STRICT ISOLATION UNTIL
January 2014
Radiation: November 2013
Antibody: January 2014
END OF TREATMENT
June 9, 2014
DFMO Trial: June 2014
(27 months of DFMO)
**FINISHED ALL TREATMENT
JULY 25, 2016

5 years from diagnosis!!
May 9, 2018

5 years from frontline!!
June 9, 2019

IN REMISSION: pending
(waiting for 5 year mark from maintenance).

Benign Tumor: June 2019

July 06th, 2015

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