Tomorrow is the 1st day of our next 2 years (27 months). Tomorrow Camden will take his 1st DFMO pills. This is a medication/chemo that is used to decrease the high level of polyamines associated with cancer (neuroblastoma). DFMO has kept 28 out of 30 children in remission, which is HUGE for neuroblastoma!! The study is small, but our goal is a lifetime of remission. Potential side effects are hair thinning, worsening hearing loss, low blood counts, and of course others (but less involved than all other medications). Please pray our next journey is smooth for Camden. Please pray we avoid complications and side effects. And while we are praying, add the resolution of the blood clot. Thank you! Hope you have a wonderful Sunday and week ahead!
MommyShe's going to keep everyone up to date about my progress. Isn't she the best mommy ever? Archives
September 2021
Diagnosis: May 9, 2013
Surgery: September 2013 Transplant: September 2013 STRICT ISOLATION UNTIL January 2014 Radiation: November 2013 Antibody: January 2014 END OF TREATMENT June 9, 2014 DFMO Trial: June 2014 (27 months of DFMO) **FINISHED ALL TREATMENT JULY 25, 2016 5 years from diagnosis!! May 9, 2018 5 years from frontline!! June 9, 2019 IN REMISSION: pending (waiting for 5 year mark from maintenance). Benign Tumor: June 2019 |