(7:30p) We had a very long day. Camden did awesome with his MIBG scan AND his bone marrow biopsies. We should get the bone marrow results on Thursday. We pray for all negative results. We received the results on yesterday's CT scan which showed new areas of concern on his spine. : ( In search of correlating results, the MIBG did NOT reveal any spine lesions or acute changes (meaning that the abnormalities on the CT scan could be healing bone, scar tissue, changes in bone from radiation, etc.) HOWEVER, there was 1 area on the MIBG scan that leaves concern. : ( It was in his intestine. BUT this did NOT show on the CT scan. It could be build up of the MIBG isotope in his stool. (Praying that is all it is)!!! 2 tests done and both show different things, but it is good that they both aren't confirming an obvious problem. Can you imagine the emotional roller coaster? So where do we go from here? We need confirmation that neither concern is relapse. So we go for a PET scan. Please pray for Camden's spine and intestines. We have to wait and get our appointment. PLEASE GOD NO RELAPSE, please God heal Camden!! Please, good biopsy results, and a clear spine and intestines on the PET scan!!! Thank you everyone for your prayers and support!! Our journey continues...
Liz
6/17/2014 11:08:46 am
Continuing to keep Camden in my thoughts and prayers!
Gramma Nanc
6/18/2014 09:07:33 am
I believe God will continue to be with you thru this journey, Prayers that all test will have great results and Camden you will get stronger everyday and have a fun filled summer and good health from this point on :) Comments are closed.
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MommyShe's going to keep everyone up to date about my progress. Isn't she the best mommy ever? Archives
September 2021
Diagnosis: May 9, 2013
Surgery: September 2013 Transplant: September 2013 STRICT ISOLATION UNTIL January 2014 Radiation: November 2013 Antibody: January 2014 END OF TREATMENT June 9, 2014 DFMO Trial: June 2014 (27 months of DFMO) **FINISHED ALL TREATMENT JULY 25, 2016 5 years from diagnosis!! May 9, 2018 5 years from frontline!! June 9, 2019 IN REMISSION: pending (waiting for 5 year mark from maintenance). Benign Tumor: June 2019 |