Camden's Crusade
Follow Camden's journey and help him fight Neuroblastoma
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Tue, Sep 24, 2013

9/24/2013

 

Our superhero is doing SUPER FANTASTIC!!!  He amazes us daily!  His dinner tonight was tacos and Italian ice!  ; ) His ANC today was 700....so he still has to drop to 0 and recover to 500 and stay at 500 for 3 days to ensure engraftment (successful transplant)....then homebound to complete isolation for 100 days!  Crusaders, symptoms are ALWAYS worse when counts are getting to zero, stuck at zero and recovering from zero, so please remain diligent with your prayers! As always, much love!!!!!

Monique
9/25/2013 03:30:43 am

Keep it up Cam! We are thinking of you! Big smiles : )

Gramma Nanc
9/25/2013 07:24:21 am

You got this Super Cam , you are the big"5" and we know you can get and hold 500!! you are Boston strong , but remember Tolland is waiting for you to come home !! , sending lots of Love & prayers :)

Aunt Donna
9/25/2013 09:35:02 am

He never stops amazing me. He has to be one of the strongest little boys that has ever been born. He is a miracle in the making and we are so happy that his treatment has gone so smoothly. Prayers, prayers and more prayers that he continues on this same path. We love you all so much.XXXOOO


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    Picture
    Mommy & Me

    Mommy

    She's going to keep everyone up to date about my progress.  Isn't she the best mommy ever?

    Mommy thought long and hard about my new website.  She thought about protecting me and not putting my hospital pictures online.  But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious.  My mommy wants to make sure that other kids don't go through this and that their parents know what to look for.  My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight.  I love them so much!

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    Diagnosis:  May 9, 2013
    Surgery:     September 2013
    Transplant: September 2013
    STRICT ISOLATION UNTIL
              January 2014
    Radiation:   November 2013
    Antibody:    January 2014
    END OF TREATMENT                
              June 9, 2014    
    DFMO Trial:  June 2014
        (27 months of DFMO)
    **FINISHED ALL TREATMENT
    JULY 25, 2016


    5 years from diagnosis!!
    May 9, 2018
    ​
    5 years from frontline!! 
    June 9, 2019

    IN REMISSION:  pending
    (waiting for 5 year mark from maintenance). 

    Benign Tumor:  June 2019

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