Ok, here we go. I owe you all an apology for the lack of updates lately. Things are starting to settle down (who am I fooling), but anyways….I need to give you the updates on the past few months and then I am going to be better at updating you more often….BECAUSE the fact of the matter is, I need you all. We still need your prayers, we still need your unwavering support. Over the winter I pulled Camden out of school. I just could not send him KNOWING the horrible winter we had with so many illnesses and contagious infections/viruses. I struggled with whether it was RIGHT or WRONG, but it was a decision that only WE could make and be comfortable with. There are pros and cons to both sides of the story. We are SO BLESSED to have such an AMAZING friend who is a retired teacher and she ever so LOVINGLY came to our rescue and tutored Camden EVERYDAY while he was out of school. She is the reason why Camden did not fall behind in school, but in fact, during his time away from the classroom, he excelled and is doing amazing. His teacher at school is so impressed and so happy with how well he is doing (as are we). (just for example, Camden jumped 4 reading levels). I know that our very special tutor is reading this right now and I know that I tell you all the time how grateful we are for having you on our side, but TRUTHFULLY, we are beyond grateful. Thank you! I hit a little bit of a wall with some of the after treatment approaches with CCMC. I was hurt and angry, confused and mad at many points. Instead of venting, I kept it all in. BECAUSE, I have the most respect for everyone at CCMC. From the people that greet you at the doors, to the people who check us into clinic, to the nurses, the doctors and every single person in-between. For years now, they have been my second family. This is why the bumps that I hit in the road hurt so much. I have had a conversation with Camden's oncologist and I pray that things will only continue to get better. I fight EVERYDAY for Camden's life. What takes place under our roof, no one will ever truly understand. We live differently than everyone else. We eat differently, we think differently and it is not always easy. For a 6 year old to be a 6 year old and to have a different outlook on life, it is challenging. Maybe I am crazy? But this is my life. We ONLY eat organic. We ONLY eat GRASS FED MEAT. We DO NOT have dairy. Camden does NOT eat Carbs *because they turn into sugar. We have NO sugar in our house, but do on rare occasion use sugar substitutes. We make our own ice cream. We make everything…no processed foods. There are no chemicals in my house. We don't care if our grass is green. I will not put chemicals on our lawn and then let Camden play in it. Some people may think this is crazy. I am okay with that. Some people might wonder what in the world we eat? I can tell you that we eat AMAZING and DELICIOUS meals 3 times a day, 7 days a week. Some people might think that it is over kill. I tell them that they probably don't have to go to bed at night and fight the thoughts of losing a child if you don't do everything is your power to TRY your hardest to SAVE him. This is our normal. We embrace it, we love it and we continue to CHERISH every moment. Camden: he is such an amazing little kid. He LOVES life. He is full of life….his entire body. He is playing baseball. Ron is the coach. It is an answered prayer to watch them both on the field together. Don't ever take that moment for granted. It is valuable and precious. We are looking forward to celebrating his 7th birthday this month. His special day is the 22nd. Cam is really excited. We need to get him a bicycle and although Ron and I haven't talked about it yet, I really think that will be one of his gifts. Camden's has some long appointments coming up. His maintenance drug has changed manufacturers. So, we will go to clinic for 2 six hour days for intermittent blood draws. Old drug versus new drug. He doesn't know this yet and I know FOR SURE that he is not going to be happy about it. It is part of our journey and we just do it and move on. We received "THE" phone call from clinic today telling us that his next set of scans are JUNE 1st and 2nd. These are the ONE YEAR OFF TREATMENT SCANS. WOW!!!! A year has gone by. I praise God every second of every day for all that He has done for my family. Camden is a miracle. I hate scans…i can't breathe during these times. I need your help….i need your prayers. I know, I trust, and I believe that Camden will defeat this. Doubt is a difficult battle. What if it is tooooo good to be true? I spent 2 hours at St. Anne's Shrine…praying…all by myself. I know "HE" heard me. This world needs Camden. He teaches us something new everyday. Sorry for the long message. Sorry for the lack of messages. I hope that you are all out there still. Please pass along the message and prayer request to all of your prayer warriors. Make sure they didn't forget about us. We thank you for your support. I have been really bad at downloading pictures, but I promise to share some soon. xoxo always…..
2 Comments
Gramma Nanc
5/1/2015 10:19:54 pm
AMEN to all good test results !!!! I know you will all stay strong and always hold on to positive energy, Miracles happen to those who believe and we so do !!:)
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Shannon Martens
5/4/2015 11:17:40 pm
Jessica you are an amazing mom! Our prayers continue for Camden, you, and your family!
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MommyShe's going to keep everyone up to date about my progress. Isn't she the best mommy ever? Archives
September 2021
Diagnosis: May 9, 2013
Surgery: September 2013 Transplant: September 2013 STRICT ISOLATION UNTIL January 2014 Radiation: November 2013 Antibody: January 2014 END OF TREATMENT June 9, 2014 DFMO Trial: June 2014 (27 months of DFMO) **FINISHED ALL TREATMENT JULY 25, 2016 5 years from diagnosis!! May 9, 2018 5 years from frontline!! June 9, 2019 IN REMISSION: pending (waiting for 5 year mark from maintenance). Benign Tumor: June 2019 |