We are chipping away at day 2. Unfortunately we still have 12 hours to go. It will be finished at 8:00 tomorrow morning. This 20 hr infusion makes for a long day and a long night; especially with the hourly vitals and constant meds. Camden is still fluid overloaded, despite his output picking up today. With today and yesterday combined we are 1200+ cc's over, equaling nearly 3 pounds in retention. Hives come and go, but are much more manageable. By tomorrow the med we discontinued should be out of his system. Thank you for all the love, support, and prayers.
Camden was up until midnight last night. The Benadryl and Ativan combo worked effectively until 6am, then he woke with hives (or like massive welts). At this point our oncologist has stopped one of the 2 medications in an effort to increase his chances of eliminating hives and getting through the remainder of this week with the more important medication running. The more important med will be running over 20 hours instead of 10. It prolongs the duration of time and stretches out the chances of a reaction, but with the slower rate, his body might tolerate it better. He remains fluid overloaded but at this point his lungs remain clear and his vitals stable. Praying for improvement in that area. The 20 hour med will be starting very soon! God carry Camden! Camden is being so brave. Hives come and go every two hours and he can only get medication every 4. It is pretty bad. In his mouth....arms, fingers, neck, back! Damn cancer, i hate you! I honestly do not know what to do....please keep praying these hives go away! We had a scare. Camden's throat and mouth (chin and lips) became numb and tingly. We were able to regain control with only using Benadryl and not the big guns. The medication was stopped for 1 hr and now restarted at a slower rate. He is still swollen some and his voice is off from the swelling in his neck. So scary! Please God, protect Camden! Please don't take him from me: not now, not ever! Thank you God for blessing us with the BEST staff here! Crusaders: keep praying! xo As we prepare for a blood transfusion, please join me in prayer that this transfusion is effective, that there are no complications, and no side effects. I am having mixed emotions right now; praying that nothing interferes with this week and that we can put this treatment behind us!
We are HOME! So, we have the remainder of today and Saturday as a family and then Cam and I are ready to return to our penthouse suite back at CCMC on Sunday. Sunday will be labs, port access, IV fluids, premeds and a blood transfusion. This next treatment week is TERRIFYING and I am requesting multitudes of prayers, positive thoughts, all and any of what you can give us! This is the treatment that EVERYTHING IS A SIDE EFFECT! It is also CRITICAL that we support him through it regardless of what medications are needed and whatever that support entails. This treatment prayerfully is eliminating all small and hidden cancer cells-too small to be seen on scans! Again, I place Camden at the feet of our Holy Family and ask for our miracle and complete protection through the remaining dreaded round 4. Amen and Thank You....going to enjoy some hospital free family time!!! (12:00pm) We are now 51 hours into treatment. Camden is starting to retain fluid in his face...he is puffy. It is so hard to watch all of this unfold before you and even more difficult to sit here knowing next week could potentially be a million times worse. (Praying it is not worse). Cam is in good spirits. We worked with his teacher this morning-doing math problems and now we are resting, watching a movie. I asked for a liver function trend because one of his lab results revealed increased liver results. It is not dangerously elevated; but we will stay on top of it! Praying this medication is doing exactly what it is intended to do and does not miss a cancer cell! |
MommyShe's going to keep everyone up to date about my progress. Isn't she the best mommy ever? Archives
September 2021
Diagnosis: May 9, 2013
Surgery: September 2013 Transplant: September 2013 STRICT ISOLATION UNTIL January 2014 Radiation: November 2013 Antibody: January 2014 END OF TREATMENT June 9, 2014 DFMO Trial: June 2014 (27 months of DFMO) **FINISHED ALL TREATMENT JULY 25, 2016 5 years from diagnosis!! May 9, 2018 5 years from frontline!! June 9, 2019 IN REMISSION: pending (waiting for 5 year mark from maintenance). Benign Tumor: June 2019 |